tag:blogger.com,1999:blog-4510078249219132701.post6321217765201698141..comments2022-04-03T20:14:13.790-07:00Comments on Life Turned Upside Down: Waiting...Lynneehttp://www.blogger.com/profile/11238425046302192162noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4510078249219132701.post-26551656682825863172017-01-13T18:55:40.577-08:002017-01-13T18:55:40.577-08:00Lynn, I was talking to my Hematologist Wednesday, ...Lynn, I was talking to my Hematologist Wednesday, she said ALS is the worst disease she has ever heard of, or been a member of a team treating an ALS patient (one who had overcome cancer, only to be diagnosed with ALS 3 years later). She agrees that you are a doing all you can, continue to remember that Eddie loves you with all his heart, even when he can't voice it, it is there. Choosing time for end of life.................I can't say, I don't want him to suffer. I don't want him to die, but, it is going to happen, and if he decides it's time, I am there as well. My heart and thoughts are with the two of you every single day.Kay C Guyhttps://www.blogger.com/profile/10734657552454039657noreply@blogger.comtag:blogger.com,1999:blog-4510078249219132701.post-33094176577280904992017-01-13T17:47:23.987-08:002017-01-13T17:47:23.987-08:00Lynn, thank you for letting everyone see all of th...Lynn, thank you for letting everyone see all of this, your feelings, what this all is like. You know my heart is with you both in a special way. There are no words. As someone said on my group said "ALS is unlike any other terminal illness". So true. Indeed, as Shaun says so beautifully I hope you can hold on to those eyes filled with love, looking at you.<br /><br />Anonymoushttps://www.blogger.com/profile/06385292293486818972noreply@blogger.comtag:blogger.com,1999:blog-4510078249219132701.post-21090939493705806472017-01-13T05:04:32.254-08:002017-01-13T05:04:32.254-08:00Lynn, my heart is breaking for you and Ed. Those f...Lynn, my heart is breaking for you and Ed. Those final days are incrediby hard, especially when your loved one loses the ability to communicate with you. It's sad, scary, and heartbreaking when you can see they want to say something, but can't. You are doing what you can by surrounding Ed with your love and your touch. I hope that there are some better moments today...hold on to those smiles and those eyes filled with love as they look at you. Sending hugs. Shaunhttps://www.blogger.com/profile/03888640921297341956noreply@blogger.com