Tuesday, August 12, 2014

Walk for ALS

For those of you who aren't my Facebook friends (who are now in the process of being inundated with my pleas for donations!!) - I'm bringing the call for help here!!

On Saturday, Sept 20, we are walking (and rolling) in the Walk for ALS.  We'd love it if you'd join the team and walk with us!

If you can't walk, please consider donating something.

Here are a few things you should know about ALS:

** ALS allows your mind to remain vibrant but systematically takes away every other part of your bodily functions, so it's literally like being buried alive.

** More than 30,000 people live with the disease each day with no real hope for a cure.

** ALS kills motor neurons, the messengers between the brain and the rest of your body, so once it attacks there is no going back.

** In the 75 years since Lou Gehrig was first diagnosed with this disease, only one drug has been made available to slow down the disease --- or two to three months.   No cure is on the horizion.  
Doctors and scientists are honing on promising therapies like gene silencing and STEM cell. Yet, they desparately need more funding.

If you can find a way to donate - whether it's 10 bucks or 50 or more, we appreciate the donation.  Here is the link that will take you to our page for the walk:


I will also say that if any of you has an hour a week and wants to come hang out with Luther, I'd love it.  I know he would too.

We have home health care three times a week - M-W-F from 10 - 1 but he doesn't really like her.  It's great to have someone here to clean a little and help feed him.   Having some company with folks he enjoys would be a blessing.

I'm now working only 4 days a week so that extra day off has been great!!  My parents and my sister and her family live close and they've been awesome in helping out.  But we have a lot of hours in between that he's stuck inside.

He's tired a lot, he can't really go outside for a walk... but having some company just to watch tv or chat or ??? we thought play Scrabble or something but his arms / hands aren't so good for playing games.

We don't have the details figure out yet:  i.e, could someone take our van with the wheelchair to go to Silver Lake park and have lunch and a walk?  Or just a spin in the chair around the neighborhood?  

Let me know!  Thanks for your time, your donations, your thoughts and prayers.

1 comment:

  1. See several members of our team take the #icebucketchallenge